Johns Hopkins Medicine: The Sidney Kimmel Comprehensive Cancer Center
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Clinical Trials

Your Rights, Your Protections

Before and during a cancer treatment study, you have a number of rights. Knowing these can help protect you from harm.

  • Taking part in a treatment study is up to you. It may be only one of your treatment choices. Talk with your doctor. Together, you can make the best choice for you.
  • If you do enter a study, doctors and nurses will follow your response to treatment carefully throughout the research.
  • If researchers learn that a treatment harms you, you will be taken off the study right away. You may then receive other treatment from your own doctor.
  • You have the right to leave a study at any time.

One of your key rights is the right to informed consent. Informed consent means that you must be given all the facts about a study before you decide whether to take part. This includes details about the treatments and tests you may receive and the possible benefits and risks they may have. The doctor or nurse will give you an informed consent form that goes over key facts. If you agree to take part in the study, you will be asked to sign this informed consent form.
The informed consent process continues throughout the study. For instance, you will be told of any new findings regarding your clinical trial, such as new risks. You may be asked to sign a new consent form if you want to stay in the study.
Signing a consent form does not mean you must stay in the study. In fact, you can leave at any time. If you choose to leave the study, you will have the chance to discuss other treatments and care with your own doctor or a doctor from the study.

   
What Are Clinical Trials?
Why Are Clinical Trials Important?
Your Rights, Your Protections
Who Is Eligible To Participate In A Clinical Trial?
Clinical Trials: Weighing The Pros And Cons
Who Pays For The Patient Care Costs On A Clinical Trial?
Why Come To The SKCCC At Johns Hopkins To Receive Your Treatment?
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